Day 57 on the Road to Recovery…. We are currently reaching the end of our “up” week after our 3rd chemo cycle round, and we have a number of things to be thankful for. The 3rd cycle of chemo has proceeded without surprises, with Sophie acting upbeat and energetic through most of the past 2.5 weeks. […]
Update
Day 41: Starting the 3rd Cycle of Chemo
Day 41 on the road to recovery… Sometimes, no news really is good news. After coming home from the hospital a little over a week ago, we’ve managed to be home and stay home which is extremely nice. There were a few days where we received planned outpatient visits to the hospital, but there were no […]
Day 30: A Reminder of our New Normal
Day 30 on the road to recovery…. “And we’re back”… those are the words that we’ve uttered already too many times, to our beloved nurses and doctors as we returned to the in-patient side of the hospital for the 3rd time in 4 weeks. During a week that we had hoped to be quiet and […]
Day 20: Conquering our First Hurdles
Day 20 on the road to recovery… The last week has been super busy, and a bit of a blur at times, hence the delay since the last post. But a few updates since the last blog post… First and foremost, we were discharged from the hospital on Friday afternoon. This time we were able […]
Day 12: Our First Transfusion — And Request for Blood Donors
Day 12 on the road to recovery… (If you don’t have time to read this whole blog, please see our request for blood and platelet donors first) Ups and downs. Good days and bad days. On Friday afternoon we received some exciting news; the doctors felt comfortable sending us home. After a full week in the […]
Day 8: Thanksgiving from the 9th Floor at Sloan Kettering
Day 8 on the road to recovery… The last few days have been up and down, as expected. We were hopeful that we’d be able to come home before the end of the week, but due to minor complications there is little chance of us being home for the weekend. While we were so lucky […]
Day 5: Into the First Cycle + Donation Link Now Live
Day 5 on the road to recovery… We have moved out of the ICU and into the General inpatient hospital. This means we are no longer on 24/7 monitoring, but it also means we now have a smaller room and a roommate. It has been a roller coaster of a journey already, and we’re just […]
Sophie’s First Day of Recovery
We wanted to share some additional updates on Sophie’s condition, as well as the story behind how we got to where we are today. We’ve learned more over the past week of our lives than any parents should ever have to learn. Our sentiment is similar to almost every similar website: We’ve gone from “That could […]
About Sophie
If you’re here, it’s because you’re a part of the army of people standing behind Sophie through her battle with Pleuropulmonary Blastoma, an extremely rare form of cancer that occurs in the lungs. If you know Sophie, you know her smile. You know that she loves Elmo and Mickey and has the deepest of dimples […]
