A Brief Post-Holiday Update

It’s been quite awhile since our last post, due to various activities, experiences, and discussions.  Once Sophie came home from camp and completed her previous cycle of chemo, the doctors booked her for a set of scans in early September to determine next steps for treatment.   We were fortunate to receive positive news from […]

Completed another Round

It’s  crazy to think that it’s been exactly 4 weeks since Sophie’s surgery.  On the one hand, it feels like just yesterday; on the other it feels like years ago.  A lot has happened over the last few weeks. As we mentioned in our previous post, Sophie was discharged one week post-surgery from MSK.  She […]

Post-Surgery Update

The whirlwind last week and a half has prevented us from providing an update sooner. Between our hospital stay, constant visits and frequent check-ups, there has barely been time to answer calls, let alone put out a blog post.  But things have finally started to settle down and we are able to share a bit […]

Surgery Tomorrow Morning

Tomorrow is the day that’s been on our minds since Sophie’s tumor recurrence in March.  Tomorrow, Sophie’s surgeon (the same as our previous one) will attempt to remove the tumor from her chest cavity.  This is a long and complicated surgery, and we would sincerely appreciate any and all positive thoughts directed Sophie’s way. Please […]

Stem Cell Transplant

The past few weeks have been busy, with lots of back and forths from the hospital to check blood counts. Physically, Sophie has been feeling good with a lot of energy and a great appetite. We’ve been able to take a number of fun day trips, including trips to museums, a pool, and even a […]

Prom

Last week, Sophie passed the half-way mark of her radiation treatments. Thankfully, short term side effects from the radiation have been limited, but it has been responsible for keeping her blood counts low. This has led to the need for more frequent blood and platelet transfusions than her previous chemo cycles. We have visited the […]

A New Hebrew Name for Sophie

Tonight we performed a special Jewish ceremony in our home to change Sophie’s hebrew name.  There is spiritual significance behind performing this ritual.  Just as G-d changed Abraham and Jacob’s names during significant times in their lives, so too we have changed Sophie’s Hebrew name with the hope of forging a new, healing path forward for […]