Day 30: A Reminder of our New Normal

Day 30 on the road to recovery….

“And we’re back”… those are the words that we’ve uttered already too many times, to our beloved nurses and doctors as we returned to the in-patient side of the hospital for the 3rd time in 4 weeks.  During a week that we had hoped to be quiet and uneventful, Sophie again spiked a fever and back we went to the place that has become like our second home, and yet we would happily move away from and never look back. We’ve been here since Monday night.

The truth is, we had four amazing days after Sophie received her second cycle of chemo.  Sophie was back to herself; laughing, playing, and eating more than she had in the last 3 weeks combined!  It was great to see our little girl back regaining her true fun-loving personality, even enjoying a short play-date and melava malka guitar playing, which she absolutely loved. However, all of our “normal” activities lulled us into a sense of security, which then made it a bit more challenging to swallow on our trip back to the hospital only a couple of days later.

We were a bit more prepared this time around. We had gas in the car, “go bags” packed in the trunk, and babysitting coverage and supplies for JJ lined up for last minute emergencies. However, none of these things made it any easier to disrupt Sophie’s normal bedtime routine to try and explain to her why we had to go back to the hospital.

Fortunately, other than her fever, this hospital stay has been fairly uneventful.  We hope it continues like this until we are discharged (again).  But in the meantime, we’ve met some new faces and seen some old friendly ones, which is both comforting and difficult at the same time.  We’ve also come to realize that all of these amazing families have their own unique story to tell.  While it’s often difficult to hear and see each of the different cases that are being treated by our same doctors, it has also helped us realize that we have the ability to help support each other through our incredibly challenging journeys.  So no matter how tired we may be at the end of the day, we’ve learned that listening to someone else’s story (even if it’s the 3rd or 4th time you’re hearing it) makes others feel heard and supported.  And that is sometimes all someone needs to really get through the day. This is definitely a lesson we will take with us as we go through life moving forward from now on in our new “normal”

4 Replies to “Day 30: A Reminder of our New Normal”

  1. It’s truly inspirational to read your insights about this journey. Thank you for continuing to educate and enlighten us. Your Sophie is one tough cookie and she takes after her parents. We continue to send you our love and keep you all in our thoughts and prayers every day.

  2. Praying for you guys. Your courage is so admirable.

  3. I just started reading your blog. I don’t know you, but please know that We are all rooting for Sophie! I will keep her in my prayers, think of you guys often and keep checking for hopefully good updates. Keep fighting Sophie! May you beat this and live a long, happy life.

  4. We think of Sophie every day and have her in our prayers. Our thoughts are with all of you.Lots of love to the family from your dads cousins in Cape Town Rae and Errol Goodman

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