Day 5 on the road to recovery…
We have moved out of the ICU and into the General inpatient hospital. This means we are no longer on 24/7 monitoring, but it also means we now have a smaller room and a roommate. It has been a roller coaster of a journey already, and we’re just beginning. Sophie has had a few days of chemotherapy and has a few day break before more on Friday.
Thank you to everyone who has asked for updates and are checking in on us and Sophie. She’s staying strong.
Here are some things we’ve learned in the past whirlwind week:
- Everyone’s story is unique – We’ve met so many people here in the pediatric floor at Memorial Sloan Kettering who are from all kinds of backgrounds, kids of all ages, and at different stages of their own personal journeys. Everyone’s story is inspiring in its own way.
- Its a roller-coaster – There will be good days and bad days. Good weeks and bad weeks. It’s inevitable, but its part of our journey to a cancer-free life.
- Community/Friends/Family are the only way to get through this – It’s beautiful how people from every aspect of our lives have stepped up to help out. In addition to all the examples in our last post, some surprising acts of kindness and generosity include: raking our yard before leaf pick-up, painting our basement so we can make a classroom for Sophie when she comes home, classmates Skyping to cheer her up, coworkers donating vacation days, countless emails and letters of support from others who have conquered their own personal challenges. Thank you everyone.
We have also had a lot of people reach out about making a donation on behalf of Sophie’s recovery. You’ll see a widget on the website, or you can donate at the Donation page. We are raising money for PPBResearch.org, the organization that is leading the research and collaborating with physicians around the world to identify causes and treatments for PPB.