Day 5: Into the First Cycle + Donation Link Now Live

Day 5 on the road to recovery…

We have moved out of the ICU and into the General inpatient hospital. This means we are no longer on 24/7 monitoring, but it also means we now have a smaller room and a roommate. It has been a roller coaster of a journey already, and we’re just beginning. Sophie has had a few days of chemotherapy and has a few day break before more on Friday.

Thank you to everyone who has asked for updates and are checking in on us and Sophie. She’s staying strong.

Here are some things we’ve learned in the past whirlwind week:

  • Everyone’s story is unique – We’ve met so many people here in the pediatric floor at Memorial Sloan Kettering who are from all kinds of backgrounds, kids of all ages, and at different stages of their own personal journeys. Everyone’s story is inspiring in its own way.
  • Its a roller-coaster – There will be good days and bad days. Good weeks and bad weeks. It’s inevitable, but its part of our journey to a cancer-free life.
  • Community/Friends/Family are the only way to get through this – It’s beautiful how people from every aspect of our lives have stepped up to help out. In addition to all the examples in our last post, some surprising acts of kindness and generosity include: raking our yard before leaf pick-up, painting our basement so we can make a classroom for Sophie when she comes home, classmates Skyping to cheer her up, coworkers donating vacation days, countless emails and letters of support from others who have conquered their own personal challenges. Thank you everyone.

We have also had a lot of people reach out about making a donation on behalf of Sophie’s recovery. You’ll see a widget on the website, or you can donate at the Donation page. We are raising money for PPBResearch.org, the organization that is leading the research and collaborating with physicians around the world to identify causes and treatments for PPB.

7 Comment

  1. Stay strong Sophie mommy and daddy. We’re all davening for you.
    Love, Shevi

  2. We were so happy to meet Sophie last year in Israel.
    And we’re looking forward to meeting here again and again for many more years, stronger and bigger, when she gets through this.
    רפואה שלמה בתוך שאר חולי עם ישראל

  3. Dearest Sophie and precious family.
    I dont know you personally but i have gotten to know your power house of an aunt Rochel S.
    The children in my class (3-4) send you lots of hugs and are wishing you well. We spoke about you and they declared you PRINCESS SOPHIE!!!! Stay brave and keep smiling.
    Keep an eye out on the mail at Mommy and Daddy’s house.
    My munchkins are sending something your way!
    I can’t wait to meet you.
    Miss Rachel Ohayon and her 12 Cupcakes from NJ!

  4. We are praying for Sophie every day! Thank you for sharing her updates with us all. We think about your family often. Jenny you are an inspirational mommy and once Sophie gets through this she will be an inspiration to other kids with similar battles! Big hugs and kisses to all of you from the Waizman’s in Charlotte!

  5. So sorry to hear about the challenges facing your sweet daughter. Wishing her a refuah shlemah. We live in Fair Lawn as well and our son has been a patient at MSK for many years now for treatment for a rare (non-cancerous) condition. Thankfully, he is doing wonderfully now. You are in the best hands. If you need anything, or just want to talk about life at MSK, please reach out. I can let you know when we’re traveling to MSK from Fair Lawn for appointments as well if you need anything. My email is robin.fineman@gmail.com.
    Hang in there,
    Robin Fineman

  6. Naomi and Benjy Eckman says: Reply

    Thinking only good thoughts and tefilot for a full recovery!

  7. Claire & Jay Hirschhorn says: Reply

    Jenny and David, Joy and Bobby, we keep Sophie in our prayers for a speedy recovery. Stay strong!

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