Day 8 on the road to recovery…
The last few days have been up and down, as expected. We were hopeful that we’d be able to come home before the end of the week, but due to minor complications there is little chance of us being home for the weekend. While we were so lucky to have our close family with us today, and amazing friends who prepared a delicious Thanksgiving feast for us to enjoy, it was very challenging to spend our Thanksgiving eating in a hospital cafeteria. Everywhere you turn, there are constant reminders that this “new normal” is still not actually a comfortable one, but rather one that everyone is forced into and trying desperately to navigate their way out.
Everyone we’ve met here in the pediatric oncology floor has mentioned the “small victories” that you need to learn to cherish. The times when Sophie rolls her eyes at you when you say something ridiculous. The times she’s out of bed waving at all the kids who walk by. The times she sings a song to herself to pass the time. The times she has 5 stuffed animals in the hospital bed with her and gives them all kisses when she lays down for a nap. Small victories.
The fact is, one of the hardest parts about the past 2 days is that Sophie has been acting more and more like her normal self as we move further away from her first days of chemotherapy. She’s happier, more energetic, eating again, and acting like nothing has happened. And it is at these moments where you forget altogether that you are living in a hospital. But then we meet with the doctors who review her chemo plan, and it brings us back to the reality that this experience is not a sprint, but rather a marathon that takes patience and endurance to succeed.
So although this was hopefully the most difficult Thanksgiving we will ever experience, there is also still much to be grateful for. The amazing compassionate nursing staff who come in around the clock and answer all of our questions in the most patient way possible. Our amazing oncologist, who himself has offered to donate blood for our sweet little girl during her chemo weeks. And our kind “roommates” and their families, who have dropped off gifts for Sophie on her bed and shared with us their stories to help us understand the path ahead of us.
And we are truly thankful to all of the amazing people who are looking out for our Sophie.