Day 20: Conquering our First Hurdles

Day 20 on the road to recovery…

The last week has been super busy, and a bit of a blur at times, hence the delay since the last post.  But a few updates since the last blog post…

First and foremost, we were discharged from the hospital on Friday afternoon. This time we were able to make it through the weekend without a surprise visit back to the hospital- yay! It was the first time we’d been able to spend more than one night at home together in over a 2 week period which was really nice. It felt so great to be home without visiting the hospital, without doctors, and without medication for over 48 hours. Sophie got a new bed, some time at the park, and lots of cookies (which is our new primary food group).

Thankfully, last week we were also able to check off two very large boxes on our list of big concerns pertaining to Sophie’s diagnosis.  The first was a PET scan, which uses a radioactive dye to track tumors in the bones. The second was an MRI of her head and neck to see if the tumor had metastitized to either of these areas. Fortunately, both scans came back clean, which was a huge relief to us and everyone treating her.

Our next big step in the process occurred yesterday, where Sophie had a permanent meta-port implanted in her chest. This 2 hour operation was a necessary step towards ensuring effective chemotherapy administration for the rest of her treatment cycles.  While most patients take a bit of time to recover, 1 hour after surgery Sophie was up and about, and asking to go play.

Finally, today we started Sophie’s second cycle of chemotherapy. This cycle will include 2 full days of chemotherapy, and a final day of IV hydration, all as outpatient treatment.

Although it’s been a whirlwind of a week, it was definitely a positive one, which we are very grateful for.  We are also extremely appreciative for all of the amazing efforts that have been put together in Sophie’s merit thus far.  These efforts include but are not limited to:

  • A weekly 15 minute “Lesson of the Week” conference call every Thursday evening 8:45-9:00PM ET. (712-451-0282, Access code: 478324)
  • Weekly challah bake for Sophie
  • A #loveforsophie Facebook Campaign. Tag your Good Deeds in Sophie’s merit
  • Several different initiatives started by multiple individuals to have the entire set of Tehillim (Psalms) recited every day for Sophie’s recovery
  • Thanks to Crowdrise for featuring our PPB Registry fundraiser on their Homepage as well as Twitter, Facebook and Instagram accounts

If you or someone you know would like to get involved in any of the above efforts (or to share your own efforts), please reply to this blog post and someone will reach out.

19 Comment

  1. Yea for all of the positive reports- God is good! You all inspire me with your positive outlook on things- you’re wonderful! Continuing to send prayers up and believing in healing!

  2. What a marvelous collection of small (and big) victories. Go Sophie!!

  3. I would love to join the Tehillim effort!

  4. So grateful to hear about some of these amazing milestones and to receive inspiration from you you guys and your brave warrior Sophie. Every day you all inspire me with your courage and fortitude. And thank you for these updates!!!!

  5. Thank you David and Jenny for the update. We love you guys and hope for cont

  6. Continued good news!!

  7. Estie and David says: Reply

    Said tehillim for Sophie at kotel….we are thinking of you!

  8. Thank G-d for the clean scans! I say Tehillim for Shalva Gavriella bas Shani Aliza and would participate in the daily group entire Book of Tehillim recitation with a couple of Psalms. Lots of love and hugs, Sara Malka

  9. I would love to join the tehillim effort. Your strength is so inspiring, I’m so glad to hear it was a good week.

  10. Rav Kanievsky Shlita
    Has Shalva’s Name In Hand!
    Refuah Shleima
    One Day At A Time
    God Is Good
    B”H

  11. We love you so so much! May Sophie conquer this tumor quickly and completely.

  12. Hinda and Aaron Dukes and family says: Reply

    Sounds like you are making a positive open vessel for good tidings! May Hashem give you all the koach you need, and then some!!! Saying tehillim all the time and Aaron gives her misheberach on Shabbos as gabbai. Lots of love, support and prayers. Thanks for keeping us all in the loop.

  13. Jonny and Randi mass says: Reply

    Hi! We are so sorry to hear about your daughter. We would love to help. Please be in touch and let us know what we can do.

  14. Faye Bourgstein says: Reply

    Yay Sophie – you go girl – we are right behind you cheering you on – you are a brave little princess

  15. Sandy And Gary says: Reply

    So pleased to hear the positive results of the past week. Hoping they continue and grow
    Praying for all of you and your families .
    You inspire all of us with your strength
    Sandy

  16. I might be able to participate In challah bake next week or week after. Please contact me at msmilesny@yahoo.com

  17. So happy for positive results!!!

  18. I would like to say tehillim for sophie

  19. I’ve been following sweet Sophie’s progress and thinking of you all often. I was so happy to read about the clean scans.
    Wishing you continued strength– you guys are truly inspirational–
    With warmest wishes for Sophie’s refuah shlema. Pam and family (Israel)

Leave a Reply