Day 20 on the road to recovery…
The last week has been super busy, and a bit of a blur at times, hence the delay since the last post. But a few updates since the last blog post…
First and foremost, we were discharged from the hospital on Friday afternoon. This time we were able to make it through the weekend without a surprise visit back to the hospital- yay! It was the first time we’d been able to spend more than one night at home together in over a 2 week period which was really nice. It felt so great to be home without visiting the hospital, without doctors, and without medication for over 48 hours. Sophie got a new bed, some time at the park, and lots of cookies (which is our new primary food group).
Thankfully, last week we were also able to check off two very large boxes on our list of big concerns pertaining to Sophie’s diagnosis. The first was a PET scan, which uses a radioactive dye to track tumors in the bones. The second was an MRI of her head and neck to see if the tumor had metastitized to either of these areas. Fortunately, both scans came back clean, which was a huge relief to us and everyone treating her.
Our next big step in the process occurred yesterday, where Sophie had a permanent meta-port implanted in her chest. This 2 hour operation was a necessary step towards ensuring effective chemotherapy administration for the rest of her treatment cycles. While most patients take a bit of time to recover, 1 hour after surgery Sophie was up and about, and asking to go play.
Finally, today we started Sophie’s second cycle of chemotherapy. This cycle will include 2 full days of chemotherapy, and a final day of IV hydration, all as outpatient treatment.
Although it’s been a whirlwind of a week, it was definitely a positive one, which we are very grateful for. We are also extremely appreciative for all of the amazing efforts that have been put together in Sophie’s merit thus far. These efforts include but are not limited to:
- A weekly 15 minute “Lesson of the Week” conference call every Thursday evening 8:45-9:00PM ET. (712-451-0282, Access code: 478324)
- Weekly challah bake for Sophie
- A #loveforsophie Facebook Campaign. Tag your Good Deeds in Sophie’s merit
- Several different initiatives started by multiple individuals to have the entire set of Tehillim (Psalms) recited every day for Sophie’s recovery
- Thanks to Crowdrise for featuring our PPB Registry fundraiser on their Homepage as well as Twitter, Facebook and Instagram accounts
If you or someone you know would like to get involved in any of the above efforts (or to share your own efforts), please reply to this blog post and someone will reach out.