The summer has really flown by, with a number of things going on. On the day of our last post, Sophie was cleared by our oncology team to attend Camp Simcha. (Camp Simcha is a sleepaway camp for kids battling cancer and other serious illnesses.) This was an amazing step, as a number things needed to fall into place to make it happen. But off she went on Wednesday, August 8th to one of the most incredibly inspirational places we’ve ever been to.
Sophie couldn’t contain her excitement as we drove her up to camp that Wednesday morning. Her amazing personal counselor Tovah, met us there when we arrived, and we then got to witness the uniquely outstanding atmosphere that is Camp Simcha. Upon arrival, each individual camper got their own individual welcome train, along with dancers, singers and music. There was a stage set up in the front of the camp, and after running through the staff’s parade, Sophie made her way onto the stage to dance and sing on the microphone. The feeling of excitement and closeness between all the campers and staff is one we’ve never experienced before; it was honestly one of the most special days we’ve experienced as a family.
Sophie was lucky enough to spend the next 11 days sleeping over at camp! It may sound like a lot for a 4 year old to be away from home, but not Sophie… she had an absolute blast and “Super Sophie” as everyone referred to her became one of the most sought after campers to hang out with (staff comments, not ours 🙂 ) Sophie’s best friend Libby also attended camp with her, sharing practically every activity, meal and infirmary visit because they were so inseparable. We feel so fortunate that she was able to have the kind of experience that Camp Simcha was to her, mainly due to the amazing doctors, nurses, staff and most importantly her 1:1 counselor Tovah. We could not have asked for a more dedicated, caring, fun counselor for Sophie, who took such amazing care of her throughout the entirety of camp.
We picked her up on Monday, August 20th, and Tuesday was already back to the hospital. We started chemo this past Tuesday the 21st but not without its hiccups. Sophie returned from camp with a virus, so we were forced to undergo chemo the entire week in an isolation room she was not allowed to leave. Fortunately, her chemo regimen only lasted 4 days instead of our typical 5, and Sophie was able to wave and smile at one of her hospital friends across the hall during some of our days in isolation.
We are back home and trying to enjoy the last few weeks of summer. The weeks ahead bring a number of important scans, as well as discussions on further treatment with our team. We will provide more updates as we have additional information.