Update

On Monday, we began our second round of chemo for Sophie.  We’ve had a couple of weeks of ups and downs preceding this new round.  As we mentioned in our previous post, we were admitted onto M9 (the inpatient side of the hospital) at the very onset of Sophie’s neutropenic phase. (This is when her […]

Sophie began the first cycle of her new chemo regimen last Tuesday, March 13th.  As the doctors had informed us, we found this drug combination to be significantly more challenging than her last treatments.  Her treatments were administered for 5 straight days (unlike the previous 2 or 3 days), from early morning until late evening, […]

On March 1, also the Jewish holiday of Purim, we received the devastating news that Sophie’s cancer had returned. After routine scans the day prior, our doctor informed us that they believed Sophie’s PPB tumor had begun to grow back. Given the severity of this news, Sophie immediately went into surgery last Monday, March 5th, […]

As all of you know, we came into MSK this morning with the expectation to undergo a lengthy and complicated open-lung surgery to correct the issue that has been making Sophie sick.  Sophie went into the operating room at 7:45am as scheduled.  But at 10:15 this morning, significantly earlier than we anticipated, the operating room […]

We wanted to share a few current updates with everyone as your support has meant so much to us over the last year of our lives.  We have recently been back to MSK for a CT scan, and we feel very lucky to say that thank God, the doctors do not believe there is any […]

307 Days… It has been 307 days since the day Sophie started chemotherapy for Pleuropulmonary Blastoma. A day that we will never ever forget…   These were 307 of the most difficult, uncertain, confusing days of our lives.  But we all fought through.  And we couldn’t be more grateful, or feel that it is more […]

Day 306 on the road to recovery… The last few weeks have held their share of ups and downs, but we have finally found a minute to sit down and share our “end of summer”, and “start of school” events.  One of our biggest highlights of this summer was finally being able to visit Charlotte […]

Day 264 on the road to recovery… As we began Sophie’s (hopefully) last chemo cycle this morning, we are filled with conflicting emotions. That may sound strange, as I’m sure everyone would expect us to be completely overjoyed.  But in reality, cancer is a disease which carries lifelong risks of recurrence, and can constantly sit […]

As many of you know, we have been on quite the journey for the past 8 months.  Constant hospital visits, chemo treatments, surgery and everything in between has been our almost daily norm.  While it’s been quite the roller coaster, the support and help of Chai Lifeline has always been constant.  They have been with […]

Day 225 on the road to recovery… We are onto our 10th (of 12) chemo rounds; which hopefully means only two more to go until Sophie’s chemo treatment is complete.  Sophie’s body’s reaction, emotional well-being and energy levels vary somewhat during and after each chemo treatment.  Some cycles she flies through without any concerns, while others […]