Onto Round 2

On Monday, we began our second round of chemo for Sophie.  We’ve had a couple of weeks of ups and downs preceding this new round.  As we mentioned in our previous post, we were admitted onto M9 (the inpatient side of the hospital) at the very onset of Sophie’s neutropenic phase. (This is when her white blood counts are basically nonexistent, thereby preventing her body from being able to fight off any infection.) We knew this guaranteed us an extended stay in the hospital until her body had time to recover and counts came back up.  We were discharged almost one week after being admitted, with the caveat that since Sophie’s counts were still low (but starting to improve), that we could return home but would need to come in for numerous count checks over the course of the following week to ensure her numbers were continuing to rise.

Last week, we were able to have some nice time at home with visits from Sophie’s teachers and therapists, interspersed with our check-ins at the hospital.  On Friday of last week (just before Passover), we came in for a routine blood check, only to find out that Sophie would need a platelet transfusion (her second of the cycle) before the weekend.  Unfortunately, these transfusions take quite a number of hours, between the pre-blood work, constant vital sign checking, and post-transfusion monitoring. We are so fortunate to have local family who really enabled us to basically “show up” right before the holiday began, without so much as lifting a finger to help prepare.

During Friday’s visit, the team also informed us that due to Sophie’s extended low platelet count, the likelihood of Sophie receiving her scheduled chemo this week was extremely low, and we would most likely need to postpone treatment until next week.  However, we were told to come in Monday for a blood check anyway to ensure the numbers were trending in the right direction. Much to everyone’s surprise (most notably our doctor and nurse!), Sophie’s counts rose exponentially more than anyone expected, and our team made the decision to start her 2nd round of chemotherapy Monday.  Like last time, chemo will last for 5 full days, with the same side effects expected. We are happy that we are able to stay on track for cycle 2, which enables us to move forward with the plan our doctors have agreed upon.

We want to thank everyone who offered, attempted, and donated either blood or platelets for Sophie’s first cycle.  This chemo regimen is known to often cause low blood counts in patients, and it is vitally important for them to receive sometimes multiple transfusions in order to recover.  Sophie in particular required 3 transfusions for the previous cycle, all of which were “direct donations” by friends, family, and strangers. These acts of generosity definitely did not go unnoticed by us or our medical team, so much so that each nurse who gave Sophie a transfusion marveled at the amazing support rallying around Sophie during this difficult time.

9 Replies to “Onto Round 2”

  1. Yechiel & Shifra Greenblum says: Reply

    Thank you for the updates. You are all in our thoughts and prayers especially during the holiday. You should all have a Happy Yom Tov and Refua Shlema together with all the Cholim of Am Yisrael.

  2. Yali Friedman says: Reply

    Thinking of you and your family and davening for a complete and speedy recovery.

  3. Thinking of your whole family and continuing to pray for Sophie. Chag Sameach!

  4. We love you and are with you every step of the way.
    Can’t wait to give little Sophie a big hug!

  5. From day one-she has been in my Tefillot ^ Rabbi Hanoch Teller hand delivered her name to Rav Yosef Chaim Kanievsky who lives in Bnai Brak from the outset
    Stay well God Bless
    Cary Sprung

  6. My Prayers are with you all always May Hashem comfort/ heal Sophie and her treatment go very very well . Be well G-D bless Sophie and you all .

    Chag Sameach my friends

    Shalom/ only goodness comfort/ simchot my friends

  7. Rae Goodman says: Reply

    Please G-d All goes well with Sophie. Chag Sameach from the family in Cape Town.

  8. Chana Rivka says: Reply

    Praying for Sophie’s recovery back to full health!

  9. Thinking of you all and sending you all our love and support. It must be so exhausting but your courage and determination is incredible and inspirational.

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