It has been 307 days since the day Sophie started chemotherapy for Pleuropulmonary Blastoma. A day that we will never ever forget…
These were 307 of the most difficult, uncertain, confusing days of our lives. But we all fought through. And we couldn’t be more grateful, or feel that it is more appropriate, to go into Rosh Hashanah (the Jewish New Year), and be able to give just one more update.
We would like to share with you all the exciting news that yesterday afternoon Sophie had her Port removed on the 9th floor of Memorial Sloan-Kettering. The surgeon that performed the removal is the same surgeon that inserted the port 307 days ago. This is the same surgeon who performed a grueling surgery late into the night to finally achieve negative margins on our little baby girl. And this is the same surgeon who, when we cried yesterday thanking him for “saving our daughter’s life”, his response was: “God saved your daughter’s life”.
307 days of running to the hospital in the middle of the night at the first sign of a fever. Now, we can grab Tylenol or Advil out of the medicine cabinet to make her more comfortable.
307 days of working with the most incredible medical staff at Memorial Sloan. The doctors and nurses that changed our lives and touched us in profound ways. The around-the-clock care they gave us, and the incredible daily sacrifices they make in their own lives to help save others. We feel truly privileged to know such an amazing group of individuals. And now we are lucky enough to go back to Sophie’s “normal” pediatrician for checkups.
As we mentioned in previous posts, this does not mean our cancer journey is over. A family hit by childhood cancer lives with this burden the rest of their lives, through anxiety, doctor checks, scans and more. But at this moment in our lives, we want to live in the present. Those other things will come, but right now, all we can think of is that our special little girl Sophie is here with us as we go into the New Year. And we can honestly say there is nothing else we could ask for.
It would be next to impossible for us to thank every person and organization that helped us through the last year in this one blog post. How can we possibly list each deed, whether big or small, that contributed to our comfort and the easing of our burden. But we know and remember each and every person, and want to say how truly grateful we are to each and every one of you. Without a doubt, we could never have gotten through this challenge without you all. Shana Tova (Good year) to all of you reading this post, and we hope we only share amazing, wonderful, joyous news in the future.