Last week, Sophie passed the half-way mark of her radiation treatments. Thankfully, short term side effects from the radiation have been limited, but it has been responsible for keeping her blood counts low. This has led to the need for more frequent blood and platelet transfusions than her previous chemo cycles. We have visited the hospital every day for the last 3 or so weeks, which has definitely been an exhausting experience.
Through it all, Sophie has been a trooper, waking up early and climbing into the car without putting up a fight. She knows which elevator to take to get to each different floor of the hospital, and patiently waits for the anesthesia and treatment because she knows as soon as it’s over she can eat cereal and snacks.
The last round of chemo was postponed by one week because her counts were too low. Therefore, she started her 4th round of chemo last Monday, May 21st and wrapped up on Friday of the same week. This was her final chemo cycle before surgery.
This cycle has had its ups and downs, but we were thrilled that Sophie was able to attend her 2nd prom here at Sloan. Every year, Sloan employees put on a full-blown “prom/dance”, where they decorate half of the hospital cafeteria for the pediatric floor prom. Each parent and child gets to choose a prom dress along with unlimited jewelry and accessories all donated by external vendors to MSK. It is truly one of the most amazing experiences to witness all of the kids, many of whom are not able to attend their own school/prom, have the ability to experience this exciting milestone in their lives and feel like normal kids, even for just a few hours.
We will continue our radiation treatments through the remainder of this week and the following week after which Sophie’s body and blood counts will have time to recover before having her surgery (tentatively scheduled for early July).