It has been a while since our last blog post, but no news can often be good news with situations such as these. Sophie began her first post-surgical chemo round on Monday, March 6th, one week after the doctors initially wanted to begin. Although she was doing extremely well post-surgery, our surgeon felt it was best to give her body one additional week to heal before subjecting her again to the grueling medications of chemotherapy. This was really nice, as we had a full week for us to enjoy, and for Sophie to enjoy acting like a “normal kid”, without the effects of surgical pain, or chemo exhaustion.
This chemo round, as well as our next 7 over the course of many more months, will be slightly different than our previous rounds. Our doctors have determined that our chemo regimen moving forward will consist of 3 of the 4 original drugs we used pre-surgery, thereby reducing our chemo days to 2 days every 3 weeks instead of 3 days every 3 weeks. This is exciting as it allows us to spend less time in the hospital, and more time at home. Other than a minor annoyance of Sophie having a cold (therefore placing us in isolation for another chemo cycle; something we have unfortunately gotten used to), Sophie’s chemo proceeded as normal, with no additional surprises in store for us.
Post-chemo, we have been lucky enough to be home most days, with only occasional day trips to MSK for check-ups, post-operative PT and OT, and a couple of unwelcome fever trips which have fortunately only needed same-day antibiotic treatments. We are expected to have our next chemo round begin early next week, and hope that the rest of our treatment plan continues as planned.
We also want to really thank everyone for the amazing mishloach manot and gifts we received over the Purim holiday – Sophie absolutely loved all the amazing treats and is continuing to ask for “the special snacks” each and every day since then.